Thursday, January 14, 2010

Its a go!

I have the appointment on Jan 26 to meet with the Dr that is over this clinical trial in Cincy. I will also be having blood work, EKG and body scan before I start.

Tuesday, January 12, 2010

Clinical Trial bsi-201

Yahoo!! I have found the clinical trial in Cincy. I spoke to the intake nurse and all sounds promising. She will be talking to the research RN here in Springfield, to get all of my records faxed!! Please pray that this is my cure!!

Thursday, January 7, 2010

OSU consult

OK we (my hubby and best friend) drove up to OSU as the snow is coming down constant. The roads are snow covered and scary.

We meet the DR and he seems OK, but has nothing encouraging to say. Basically no to every surgery option. "BUT, we do have this clinical trial that we are offering." Note it is in clinical phase I. "We have 3-4 women participating in it, and we found that 1 women was not responding to it at all." -----OK then after all of that I would be a fool to jump on board. So I started researching other TNBC mets clinical trials. I come across the bsi-201 and it sounds as if it is having some great outcomes. Tumors are shrinking!! So of course I start searching for the one near me.

Monday, January 4, 2010

Liver Cancer diagnosis

Well today was a total shock of a life time. I was told that I do have liver cancer. I just sit here and cry and wonder again WHY????????????????????????????????????????? This is just a total nightmare. I just can not grasp that all of this is happening to me. And why does my family have to suffer and watch me go through all of this. I guess the dream of Mike and I having a huge diesel pusher and traveling across the US will never happen. I do hope I live long enough to see all 3 of my children graduate college. But after looking over the internet it seems that prognosis is 6 months to 18 months. I guess a great milestone for me would be 40. Most people dread turning 40....but in my case I see it as inspiration.

Thursday, December 24, 2009

Christmas Eve

Well what a day this has turned out....I had my liver biopsy done today. Yes it did hurt. More after the procedure than during. I was glad that my hubby and great friend were able to be there.

Sunday, October 18, 2009

Last Chemo MONDAY

Hello All
I just wanted to share with you that tomorrow will be my last chemo. I am trip negative with a modified radical left mastectomy after having a lumpectomy back in March 2009. I can not believe the journey this has been. I was treated with A/C x4 and Taxol x12. The AC was horrible, it made me very sick and after treatment #3 I had to be put in the hospital for rehydration. I have done well with the Taxol. I think by treatment #8 I started with some numbness in my fingers. But now I have numbess in my fingers and toes and my hands are swollen along with my feet up to my knees. I did loose my hair and currently have toddler hair. LOL. I am so glad to have this chapter of my life coming to an end. Good Luck to all of you that are currently going through this, it is possible to see the light and come out on top!! Keep ur head up :)

Tuesday, October 6, 2009

Getting close

Well I had my 10th Taxol treatment on Monday, and all went well. I have 2 treatments left and I can't wait to have my Mondays back!!!! I'm sure my parents will be ready too, so they can head South for the winter. We have a big Chicago trip coming up on Saturday that my friend has planned with some of her great co workers at OSU. I am really excited about going, since I have never seen Chicago. It will be a long trip, but enough excitement to keep us all going. Just like the great support from family, friends, co workers and many other people who have kept me going and in good spirits during this long 7 month process. It has been a major life style change.